Meet the Pirlot's

SunriseWALKS - Long Island

June 10, 2018

Henry Kaufmann Campgrounds
75 Colonial Springs Road
Wheatley Heights, NY 11798

 

MEET OUR AMBASSADOR FAMILY FOR THE 4th AURORAWALKS

We are THRILLED to be chosen as the Ambassador Family for the 4th annual AuroraWALKS on Saturday, June 11th. Our family has formed Jax's Axes...and you can help us reach our goal!



Our Story...  
 
On June 18th, 2021, I took my son, Jackson, to the doctor for what looked like a rash but with a spotted raspberry type bruising. Our pediatrician took one look at him and said, “This is hematological; I can’t diagnose this. You need to go to the CHOA ER.”
 
On the drive, I thought about what she had said, Hematological...blood...I mean I know there are a few things that can be blood-related, like Anemia...and I remember thinking...and there’s cancer...but no way. Not us. That won’t happen to us. That’s huge. Too big to happen to us... and I brushed it off using the natural logic of things. We don’t have a history of childhood cancer on either side of our families. Jackson is too healthy for it to be cancer...but even still, I couldn’t shake that smallest of possibilities. I just tried not to put too much time into it until we heard from a doctor. 
 
The doctors examined Jackson and pulled blood to run lab tests. When the results came back and the doctor sat with us, solemnly stating, “We found blast cells in his blood samples. It hasn’t been verified yet, but this is indicative of leukemia.” I started crying, but still, even already knowing the answer, naively asking, “but it hasn’t been verified right? So, there is a chance that it isn’t that, right?” Knowing that he wouldn’t have said that it was probably cancer unless it was cancer.
 
As he answered in the best way he could, something to the tune of, “well, it hasn’t been verified yet, but blast cells are only present when there is cancer.” I just looked at my child, and then at my husband who was also aware of the naivety of the question and that we both already knew the answer.  We were both trying to come to terms with this heartbreak. I looked back at my child and tried to process what they were telling us. Through my heartache, my son sat and smiled away playing with some cars, completely unaware of the devastation that had just landed across his parents. 
 
This began our journey which is estimated to be a two-year long treatment plan. We have endured surgeries, hospital stays, countless clinic trips, and delays in his treatment. Through it all, he has smiled and played and ran around like any other 2 to 3-year-old boy. He has been polite and said thank you for IV pokes that weren’t easy for him to endure. He has been through the ringer and then some but still enjoys his life and is the happiest little boy you’d ever meet. Jackson gives hugs to all his nurses, telling them he loves them, and greeting everyone entering clinic with a BIG hello and smiles. He has taught me to realize that there is always a reason to smile and be happy, and that is how we fight, with positivity and optimism through and through! I am smiling because he is smiling every day! 
 
I have three boys and Jackson is my youngest. Our story of how Jackson’s diagnosis has affected our family unfortunately, doesn’t just begin the day he was diagnosed.
 
Let’s rewind a bit further back in time; on March 16th 2020, the world changed when Covid-19 shut down all schools. My older sons, Cameron, then aged 13, was in the second half of 7th grade and Noah was only 7, in the second half of the 1st grade. They began an incredibly long journey of isolation. In August of 2020, we opted to keep the two older boys’ home and enrolled them in a structured homeschool program. This program did not offer many opportunities for them to interact with their peers, even though I had been told that it would. My boys muscled through, however, and they hoped to return to their regular public schools in the fall of 2021. But once again, God had other plans for our family, and with their brother’s diagnosis in June 2020, and Covid still stretching tragedy across the U.S., our family opted once more for the virtual path of education, at the expense of all three boys’ social growth.   
 
Cameron and Noah both understood the sacrifice we all made and although disappointed, they were willing to make it because they love Jackson so much. They have been patient and understanding, waiting for their parents’ time and attention. They have stepped up to help the family so that we could concentrate on Jackson’s care. They have waited patiently to return to their friends and their school in which they are most comfortable. They do all this because they love us, their mom and Dad, and want to help make it easier for us to do what we need to do. And they do all this because they love Jackson, their little brother, and want to see him happy and healthy! It is uplifting and heartwarming to see them love him and play with him. They would make any sacrifice necessary for each other. 
 
Thank you to Aurora Day Camp for recognizing the siblings of a child fighting cancer; they are unsung heroes in this long exhausting fight. Aurora understands what our family needs and is going through!  We so appreciate that Aurora is doing their part to give them a wonderful fun summer. It’s time for both my older boys to have some time to just be kids and have fun with other kids in a safe environment; this is the mission of Aurora Day Camp. To simply give summer back to children with cancer, and their siblings.
 
Thank you to all of you reading our story and your willingness to give to our team and participate to help raise awareness and funds for this incredible camp!
 
Our family is doing extremely well, we are fighting this thing and winning, and we are doing it together, and it is all thanks to the support that all of you give us, so again... 
 
THANK YOU! 
 
Now let’s... 
 
TAKE ACTION FOR JACKSON AND CUT DOWN CANCER AS JAX’S AXES!!!!!!